…NEWS

Ok we are on a roll. Dear Brother arrived yesterday afternoon, we spent a few hours talking after dinner and got him settled in his hotel room.

He got his tests taken care of today and I again got platelets, we had lunch and then met with Dr P and my Transplant co ordinator.

It looks like I will be going in sometime during the week of August 6th to start the chemo and he will be coming out the following week. The Dr said that they might actually use Bone Marrow rather than stem cells, but that won’t be determined for absolutely sure until they get the results from the tests.

I have to get another Bone Marrow Biopsy on Tuesday the 24th, to check for various things, such as Bone Marrow disease (where the marrow is damaged extensively, whether there is any sign of Lymphoma in my bone marrow and to make sure my the lymphoma has not transformed into Luekemia ( that happens sometimes when you have had as much chemo and treatment as I have) If any of the above is seen, it will change the type of chemo/Radiation that I will get.

Right now the drug combination he is planning on using will not cause me to lose my hair again though it will cause it to be brittle and break. I can deal with that.

I slept the best I have in ages last night, even falling asleep sitting up with my glasses on and the light still on. I woke up this morning feeling pretty good.

So is everyone ready to get this trip rolling, getting over this damn speedbump once and for all. Lets do it.

Special Note to B

Thank you so very much for what you are about to do for me. I am eternally grateful that you matched me, or I matched you. However I look at it I am so very lucky to have you as my brother.

Nerves are shot

My rubberband is about to snap. the continued waiting and waiting. I might not see this thing underway until the end of August at this rate due to issues I can’t discuss.

I am over the verge of needing some serious mental help soon along with a ton of meds to deal with the depression, anxiety and panic attacks.  Its so tempting to call my Dr and call this whole freaking thing off and just take the year that he quoted me and just be done with this whole ordeal.  The 2 times a week transfusions over and over, hell in the last 5 months I have had  lets see 4 weeks a month x 2= 8 x 5 =40 and that doesn’t include the 5 or 6 times that I had to do transfusions 3 times a week.  I would be dead without them as my blood counts have been totally non existant for the last 5 months. So basically the transfusions are keeping me alive at this point, because my bone marrow did not recover from the Zevalin treatment and all the other treatments that I have had over the last 3 years.

I found out that my Dr is scheduled to be on vacation from July 24th through the 6th of August, which puts another kink in this whole mess, but he deserves a vacation himself and can’t revolve his personal life around me.

I was so hoping that I would have been able to get this show on the road before the end of this month, I just want to get it over with, the fear that I live with every stinking day is making me feel hopeless for any future for me.  Hell the damn cancer still exists in me, is it starting to grow again, i don’t have any defenses against it right now. who knows. All I want to know and its a question that I have never voiced in 3 years… WHY ME?

Its about damn time

It is official. I have gotten the approval for my SCT directly from the Insurance Company.  My Transplant Co ordinator is off til Thursday so not even she knows yet.  She will be getting in touch with Donor Brother to schedule his physical and from there I should get admitted approximately 3 weeks or so after that.

So we are on a roll, are we ready to rumble???

Hi everbody.

life is boring, nothing exciting to report, got my eyes checked today and dialated (that sucks big time, I see can’t see good right now)

Still waiting on news from Insurance co. I now weigh 125 pounds, I am slowly getting the weight back on 5 to 10  more to go and I will be happy.

Stu is doing good, he is still tolerating my mood swings and general being a pain in his ass.

Thats all for now folks