Happy Friday

Just got back from getting platelets, my pre count was a whole 5000 platelets,,, only 295,000 to go.. sigh

It is cold and wet out only 66 degrees outside, yet another sigh

Dr got the missing information into the Insurance Co yesterday so hopefully it won’t take long for the Ins Co to make a determination and give the final approval for me.

Thats all folks

Incompetence part 2

All I had to do was make one tiny phone call to my Insurance Co today, to inquire why it was taking so long to get approval for the SCT… ahhhh ready for this one… They never got all the paper work that they need to review my case.. Sigh  so I made a call to my co ordinator so that she can follow up,, but that 2 weeks wasted.  I wish I had made that call last week, I probably would have had the approval by now.  Did the working world take a vacation and forget to tell someone?  Needless to say I am not a happy camper right now.

Waiting, and more waiting

Well, it maybe more than 6 to 8 weeks now before I go in, we are now waiting on the final approval for my SCT from the insurance co.  Once they finally approve it, then my brother has to come out for his physical, and then we wait for the results for that, then they have to schedule him to come out for the actual harvest of his cells. Once the Dr has definitive dates I will get admitted the week before he does the harvest, I will be getting the Cells immediately upon harvesting, no deep freeze like they did with my cells last year.  So its a waiting game now, and you  all know what I think of waiting,,, I hate it. Waiting only gives me more time to think and worry, and worry some more.

I don’t want to have to do this to begin with, but as that I have no choice, I want to get it over and done with. I had been prepping myself to face this headon, but geez with all the delays its rubbing my nerves to a frazzle.

Anyway, the counts are still in the basement, I am still getting transfusions twice weekly, which is another PITA but nothing I can do about that.

Its hot, humid and sticky outside I wish it were spring or fall. sigh..

TGIF

Thank goodness another week is finally rolling to an end.  This hasn’t been a good week as I  allowed crap to get to me which put me into a major funk.. I am still trying to get my disability retirement crap straightened out, I have voice mail and unresponded emails, its so frustrating to not be given the courtesy of a email or return phone call acknowledging your questions and concerns, even if it were to tell me..” we are just screwing around with this because we can”.  It makes me feel like I am invisible and that my concerns are not important.

Other than that I am alive and kicking, my elbow from last weeks episode is extremely bruised and sore as all get out, I just have to deal with it for now. its not a pretty sight.

Have a great weekend

Time is flying

Hello world, I am still here.

I had my pulmunary (lung) and mugascan (heart test) on Friday. The technician that did the lung test had to draw blood from the artery in my wrist, as she could not access it, she has to go for the one in the crook of my arm. she then put gauze on it with the medical stretchy tape that sticks to itself.. Can you say Torniquet?  By the time Stuart and I got home, my arm was swollen to the size of a soft ball at the elbow and was quickly spreading upwards.  I called my dr and was advised to keep ice on it all night to bring the swelling down.. I will not gross you all out with pictures but right now I am bruised an assortment of yellows, greens, purples and black from below my elbow to my shoulder.

So with Fridays adventure it left for a miserable weekend for me as it hurt to do anything.

I had to get platelets and whole blood on Monday and I saw my Dr for the results of all the tests. Everything looks good, except the PET scan still shows a trace of the lymphoma in the groin area, but the Dr said that between the High dose chemo and my Brothers immune system, it will wipe that out.

Now we wait for the Insurance Co to give its okay for the SCT and we can get this ball rolling, I see my Dr again on the 25th and they are going to try to see if they can get my brother out here on the same day for his physical.  Again this all depends on the final approval from the Ins Co.  From there its just a matter of getting the results from his physical and scheduling with the  Transplant Floor, and the Unit that will harvest his Cells. and I will be admitted on or right before he begins the harvest to start my chemo. This time is really sneaking up on me.

I am ready to get this over and done with and to begin the journey back to health and life. (in all honesty I am shaking in my shoes and scared to hell)  But I can do this, because of all the love and support that I have from my family and friends.

Thats all for now.

BTW

HAPPY BIRTHDAY GINNY, I didn’t forget, I just don’t have your email addy and I didn’t save your phone number to my phone.

I figure I had better write something as I haven’t been too good about posting lately,

 The most exciting thing to happen this week is I scratched off an instant lottery ticket and won 75.00 woohoo.  I want to win the big money but I will settle for what ever I get.  I will have Stuart cash it in and keep it for him pocket money next week to cover parking expenses and lunch.

I don’t know if I told you but I have a new laptop courtsey of Stuart. my other one kept screwing up and Stu didn’t want me going without especially with me going into the hospital soon, and then the computer tech guy was able to fix and restore the other one, so now I have 2 lappy’s. So I will always have a backup to use if this one screws up.  Though I don’t have everyone’s email that has my main email address, I need those of you that haven’t yet to drop an email to my charter account. (just remembered that I did talk about this already, but I am not deleting what I just wrote)

My roses this year took off like crazy, they were absolutely beautiful this year til a couple of days of high winds beat the heck out of them.  Stu got me a trellis thingy for my one climbing rose bush its over 6 ft tall already and its only 2 yrs old.

I snuck in a manicure and pedicure last week, my nails had gotten so long they were getting on my nerves. I am going to get one last one in right before I go in, so that business will be taken care of.

I am up to 120 pounds now, I still need to put on a few more pounds in the next few weeks, I have been drinking Ensure with 8 ounces of milk and a banana every night before I go to sleep, and I have been eating a lot better than I was, sometimes my appetite surprises me.

Well I can’t think of too much more, I go for more tests tomorrow and I see my Dr on Monday, so I will post what he has to say when I get home.

Love ya